Tuesday, 21 May 2013

MDS supports AMD Week

By Sharon Siddique
MDS President

MDS was again a partner with Khoo Teck Puat Hospital in contributing to the success of the annual AMD Awareness Week (19 to 24 May 2013). The launch was held on Sunday, 19 May, from 9am to 1pm. From 11am to 1pm, and in cooperation with hospital staff, MDS hosted a number of Patient Support Group Talks. These included several presentations on this year’s theme of “Eat Right Save Sight”, the highlight being the ever popular cooking demonstration.



Other topics included counseling patients with macular degeneration, introduction to the Guide Dogs Association of the Blind, and a dialogue session with a representative of the AMD Alliance International from London.

Exco members were on hand to recruit new members. MDS adviser, Dr Au Eong Kah Guan has generously donated copies of Denise Au Eong’s recently-published book, “When Grandma Sees a Whirlpool”. He has generously offered each PAID UP MDS member a FREE copy of the book, while additional copies are available for sale at $12 at All For Eyes (Tanglin Shopping Centre 05-23). All proceeds of the book sales will be donated to MDS Singapore.

Wednesday, 8 May 2013

When Grandma Sees a Whirlpool


Book Review


By Sharon Siddique 
President, MDS Singapore 

May 2013 

When Grandma Sees a Whirlpool by Denise Au Eong, is a newly published children’s book about AMD (age-related macular degeneration) written from a unique perspective. The narrator is a young boy who accompanies his mother and grandma on a visit to an ophthalmologist (eye doctor). 



Grandmas are special people. From them we learn about life, and living, and also about the natural process of ageing. Grandmas slow down, have trouble running and remembering. They complain about aches and pains. To a child, even a spritely 50-year-old grandma is “old”. 


One of the most difficult illnesses of old age to explain is deteriorating eyesight. There are often no outward signs of failing vision. Eyes “look” normal. So children can be oblivious of grandma’s eyesight problems. 

And this non-communication is often compounded by grandma’s unwillingness to seek help. Older people often tend to resign themselves to such conditions. They accept that many infirmities are inevitable, and stoically sit rather than actively intervene. 

The author is to be congratulated for promoting the magical ingredient of inter-generational communication – grandma, mother, and Julian band together to tackle grandma’s “whirlpool”. This book is a must-read for all children who love their grandmas because it not only informs about AMD, but also reinforces the importance of cultivating loving relationships. Love, trust, concern, reassurance, are all provided in abundant supply. 

The last section of the book is a great bonus. Well-known ophthalmologist, Dr Au Eong Kah Guan presents a clear and informative introduction to AMD for adults. 

The book is well-illustrated and designed, making it a very professional read indeed. The illustrator, Eliz Ong, has created an extremely attractive and colourful child-friendly layout, and Spring Publishers have excelled in the technical aspects of editing and printing. 

As AMD is a life sentence, Dr Au Eong also profiles two organisations which can extend support to AMD patients and caregivers. Information on the AMD Alliance International can be found on its website: www.amdalliance.org. 

Closer to home, the Macular Degeneration Society (MDS) Singapore can be approached through its website,  this blog and on Facebook. 



Dr Au Eong has kindly donated 200 copies of this book to MDS. All members will be given a free copy during our events. The book is also available for sale at $12 at our events and at All For Eyes (Tanglin Shopping Centre #05-23).



Monday, 29 April 2013

AMD Awareness Week 2013

The annual AMD Awareness Week is back and will be held earlier than usual this year. Instead of the September date which has been the case in past years, the event will be in May this year. There will be educational talks on AMD, quizzes, cooking demonstrations and eye screenings.

Date: May 19, 2013 (Sun) 
Time: 9am to 12pm 
Venue: Learning Centre, Khoo Teck Puat Hospital 

Please click on the below link to view the activities lined up!

Monday, 8 April 2013

Cholesterol drugs may save sight

Researchers in the United States have found that eye drops designed to lower cholesterol may have an added use: help fight age-related macular degeneration (AMD). The research found that macular degeneration shares the same problem as the hardening of arteries. Both are unable to remove a buildup of fat and cholesterol.

Those who suffer from a hardening of arteries, or atherosclerosis, are usually prescribed medication to lower cholesterol and clear the arteries. Now, by testing on mice and human cells, scientists have discovered that these drugs may be able to prevent AMD. 

By delivering the drugs in the form of eye drops, it can be used directly into the eyes and minimise the chances of side effects through oral administration, say doctors. 

The research is still in its early form, but offers an interesting option to increase ways to treat AMD. Click here and here to read more about this development. 

Thursday, 28 March 2013

Dench rocks despite AMD

March 26, 2013

By Belinda Goldsmith

LONDON (Reuters) - Actress Judi Dench may be battling deteriorating eyesight and a failing memory but the veteran performer showed no sign of faltering when she teamed up with fellow James Bond star Ben Whishaw on a London stage on March 25.


Dench, 78, one of Britain's most-respected actresses, has tackled a list of stage and film roles over her career, at ease with Shakespeare as in Hollywood, playing M in seven Bond movies before bowing out of 007's life in last year's "Skyfall".

It emerged a year ago that Dench was suffering from macular degeneration, the leading cause of severe vision loss in people over 60, and she relied on friends to read scripts to her. This month she told a television interview she took fish oil tablets daily to boost her memory and remember her lines but said she had no intention of slowing down or stopping acting.

Dench won nothing but praise on Tuesday for joining 32-year-old Whishaw, the gadget guy Q in James Bond, in a new play, "Peter and Alice", by American playwright John Logan who co-wrote "Skyfall".

"(Dench) lends to Alice her brilliance at combining a sense of tart, witty combativeness with a reverberant depth of bruised humanity," wrote critic Paul Taylor in the Independent although he was less enamored with the play, giving it three stars out of five.

"Dench is unmatchable," raved the Times critic Libby Purves, giving the play that "breaks your heart open" five stars.


Logan's play imagines a real-life meeting between an elderly Alice Liddell Hargreaves and 30-something Peter Llewellyn Davies at a Lewis Carroll exhibition in 1932, the people who inspired Carroll's "Alice in Wonderland" and J.M. Barrie's "Peter Pan".

As the two start talking and look back to their childhoods, the gaps start to emerge between the fantasies of the stories they inspired and the harsh reality they faced as adults, confronting loss, death, illness and alcoholism.

The 90-minute play, painfully moving, was described as a tenderly sketched portrait of life's challenges.

TRAGEDY

"No one expresses that pain and resilience quite as acutely yet stoically as Judi Dench, and she is ideally partnered by the more depressively hang-dog presence of Ben Whishaw for a beautiful study in contrasts of how they deal with life's blows," wrote critic Mark Shenton in the Stage.

The true story of the five Davies brothers, whom Barrie befriended, is tragic. The eldest, George, died in the trenches of World War I, while Michael, the second youngest, committed suicide aged 20, and Peter, the middle child, killed himself by throwing himself in front of a London train in 1960 aged 63.

The case of Alice Hargreaves (nee Liddell) is almost as sad. She lost two of her three sons in World War I and ended up broke after her husband's death, selling off the original 1864 "Alice" manuscript to raise cash. She died in 1934.

"One of Judi Dench's great strengths, seen in countless Shakespearean heroines such as Viola and Beatrice, is her ability to combine ecstasy and melancholy, witnessed in abundance here," wrote the Guardian's critic Michael Billington, giving the play four stars.

"Peter and Alice", running at London's Noel Coward theatre until June 1, is Logan's first new play since "Red" which opened in London in 2009 and went on to win six Tony awards, Broadway's highest honors, in 2010.

Click here to read reports last year which first revealed Judi Dench's AMD.

Friday, 22 March 2013

Disability: A social issue to be treated with care

This is a commentary on the Scoot-Thomas Chan incident. Scroll down the blog to read Mr Chan's original complaint against Scoot airlines and also the company's response. 

March 15, 2013
The Straits Times

By Andy Ho 
Senior Writer

A WRITER to The Straits Times Forum Page revealed recently how budget airline Scoot barred him from a Dec19 flight because he is visually handicapped.

Travelling on his own, Mr Thomas Chan, 34, had a return ticket to Sydney, but was barred from the flight because he did not have “an accompanying guest”. Although an unrelated traveller was willing to put in writing that he would be Mr Chan’s carer for the journey, Scoot still stopped him from flying.

And all this came just after Singapore signed the Convention on the Rights of Persons with Disabilities on Nov 30 last year. This international treaty, with 155 signatory nations of which 129 have ratified it, is a platform for fostering national-level changes to disability law and policy.



Once Parliament ratifies it, it will be incorporated as domestic law whereupon international civil rights for the disabled will be transposed to Singapore.

So the treaty creates human rights obligations for the disabled at the international level that are given effect at the domestic level. When implemented as law here, it should lead to deeper domestic internalisation of these human rights for the disabled, for the law can change mental structures.

In particular, the convention is rooted in a model of disability that sees it as a social problem rather than a medical one.

Think about it: If there are only stairs to the workplace, those in wheelchairs have no independent access to it. If there are no tactile tiles in MRT stations, the blind can’t self-navigate. So the disabled suffer impairments because of environments created without their needs in mind.

This means that a disability is not so much a physical problem lodged within the individual than one which primarily arises from the environment being built in ways that reflect social attitudes and norms that are unresponsive to the needs of the disabled.

But most able-bodied people think about the disabled as being saddled with biological deficits, so what they need is medical attention and some public aid. For most of us, the “problem” is located in the disabled person as a biological shortcoming of his.

So we try to fix him instead of adapting society to his abilities. But we build the environment for the average (able-bodied) person, in effect building barriers against those who are not like that average. If, however, the built environment were adapted for the whole range of human abilities, the disabled would suffer fewer or even few functional limitations.

If we re-imagined disability as a problem located at the interface between the individual and his environment, if we grasped how the built environment unfairly helps the able-bodied while disadvantaging the disabled, we may begin to see how society is morally obliged to remedy the environment for the disabled as a matter of civil rights, not special privileges.

But as a society we don’t quite perceive disability rights to be civil rights yet. The proof lies in our not yet having a law requiring all public and private organisations to redesign physical barriers like doorways, entry ways, lavatories and the like or modify their informational structures so the blind, deaf or dyslexic, say, can have equal access.

Happily, the rights the convention will introduce once it is incorporated as national law may compel society to re-examine its policies and processes that hamper the disabled daily.

Some may decry this “rights” talk but if we don’t engage in it, our society will continue to regard the disabled mainly as incapacitated individuals. If disability were just a biological flaw, any request to modify the environment would be conceived as a demand for special rights. And any remedy “offered” by “us” would be charity.

However, if we were to re-imagine their impairments to be not so much a lack of ability but something normally found within the whole gamut of human abilities, then the problem may be seen to reside in how our environment is built with no regard for them.

A law that construes disability rights as civil rights should encourage citizens to see disabilities as being less biological and more social in nature, and the disadvantages which the disabled face not as naturally but socially caused.

The treaty requires the signatory state to “designate one or more focal points” to implement it domestically and have the implementation monitored by an independent body that includes disabled individuals and their representative organisations “participating fully in the monitoring”.

It also requires the signatory state to include the disabled in its law-making process. However, aggrieved Singaporeans like Mr Chan would still have no individual recourse to the highest avenue under the treaty unless Singapore also accedes to the Optional Protocol, a side agreement among signatory states to permit the convention’s Committee on the Rights of Persons with Disabilities, comprising 18 human rights experts, to consider complaints from individuals. The Optional Protocol has 91 signatories, 76 of which have ratified it. Singapore has not signed it but should do so immediately and ratify it as well.

Wherever and whenever the disabled continue to be hampered by physical and informational barriers in their daily lives, it can only mean that their society is maladapted to human variation. The treaty signals global recognition of this fact – and ours too.

When it becomes domestic law, Singapore must implement it not woodenly as just technical standards to check off but as a map to transform our society into one where the disabled have equal dignity and equal worth.

Thursday, 21 March 2013

Scoot doesn't discriminate against any passenger

The below is a response from Scoot to the earlier letter from Mr Thomas Chan. Scroll down to read Mr Chan's original letter. Scoot's response is also published in The Straits Times' Forum pages. 


WE THANK Mr Thomas Nathan Chan Kim Yong for his feedback ("Airlines shouldn't discriminate against travellers with disabilities"; Tuesday). As per our conditions of carriage, Scoot will not allow a person who requires special assistance to travel without an accompanying guest, unless the person can travel safely without assistance or supervision.



As a low-cost airline, we do not have the systems, staff or facilities required to assume responsibility for such assistance. This is clearly outlined in the terms and conditions that must be accepted in order to purchase a ticket, and via the "special needs" link on our website home page, which also states that incapacitated persons, those with an illness or other people requiring special assistance should contact us at least three days before the scheduled departure. If we are not notified, it may not be possible to obtain third-party services at short notice.

Though we note Mr Chan's claim that his friend had called to inform us that he was a blind person travelling on his own, we have been unable to locate the telephone call from our recorded archive, nor was there a note in the booking to indicate that the request had been made. 

We had substantial correspondence with Mr Chan on this matter and, from the beginning, committed to give a full refund should the investigation reveal that we had made a mistake. As no evidence could be found that Mr Chan had informed us beforehand, or had an accompanying passenger in his booking, we offered to refund only the taxes we had collected on behalf of the airport and the government authorities.

We do not discriminate against any passenger. All passengers, including those with disabilities, are subject to and must agree to the same terms and conditions. To prevent such cases in future, we have highlighted the relevant clauses via links on our website home page and in the booking path itself, in addition to the final confirmation of acceptance at the point of purchase.

See Ling Ling (Ms)
Assistant Manager,
Marketing & Communications
Scoot